SUM Vlogging

Diabetes365


2010 edition
 Subscribe to Diabetes 365

The SUM Blogroll


    The best of the d-blogs.

Sponsored Ads



SUM Stuff



    I'm Speaking at BlogHer '09






    Proud member of the Patient Blogger Code of Ethics:


    Perspective, Confidentiality, Disclosure, Reliability

    The SUM Online Store

    Six Until Me Store

    Check out the Cafe Press store for "sum" more products!

I Am Not A Doctor

    DISCLAIMER:

    I am not a doctor. I am not a certified diabetes educator. I have no medical degree (and I can't drive stick). Nothing on this site qualifies as medical advice. This is my diabetes life - if you are interested in making changes to yours, please consult your doctor.

    If you email me, your personal information will not be shared without your permission and your email address will not be sold to any company or entity. You are safe here at SUM.


    This website is accredited by Health On the Net Foundation. Click to verify. We comply with the HONcode standard for trustworthy health information: verify here.


    Some kind words about SUM

March 19, 2010

Accuracy in Glucose Meters.

Accuracy would be nice.I've been diabetic for over twenty years, and when I was diagnosed in 1986, my first meter was an Accu-Chek (this post has some pictures of these old diabetes meters).  The strips were large, absorptive pads that soaked up the blood drop and changed color after I wiped the blood away with a clean cotton ball.  The color strips were either stuck into the machine and read after 120 seconds, or the color pads were compared against the guide on the side of the strip bottles.

Comparing colors?  Total guessing game.  But waaaaay back in 1986, glucose meters were FDA "OK'd" to be off by a margin of 20%.   That means (if my math is right, and don't trust me that it is because I'm still a Morrone) if my meter said "100 mg/dl," I could have been anywhere between 80 mg/dl - 120 mg/dl.  For me, particularly at this stage in my life, that's "almost low" or "almost needing a correction bolus."

Wouldn't you think we've come such a long way since then?

Oh, but we haven't.  

The standards for glucose meter accuracy haven't been tightened up since before my diagnosis.  Sure, meters have gotten fancier and faster and they come in a variety of brands, colors, and sizes, but they aren't more accurate than the ones I used when my fingers were being lanced for the very first times.  (And this was proven to me when I was at the ER the other night - the nurse busted out a Lifescan meter that was older than dirt to test my blood sugar.  It was their approved hospital meter, and the results were the same on that meter as they were on my current Lifescan meter.)

Scott wrote a remarkable post about the issue of meter accuracy yesterday (click here to read it) and Kelly also hit this nail squarely on the same day (her post can be found here).  And Bennet questions what accuracy is in the first place.  And after reading their posts, I'm inclined to comment as well. 

I base EVERYTHING I do, diabetes-wise, on the information provided by my glucose meter.  I base my insulin-to-carb rations on those results, my basal rates, my food intake, and my exercise decisions on those numbers.  I calibrate my Dexcom using those numbers.  EVERYTHING.  Hell, maybe not even limited to just diabetes stuff.  I won't get into my car and put the key in the ignition if my meter shows a result that's too low, and I am reluctant to eat more than a salad at dinner if my glucose result is way too high.  

So when the numbers being provided by my meter aren't as accurate as my dedication and determination deserve?  I get a little fired up.

Over the course of my diabetes life, I know my meter has thrown some wonky results.  I'd have to ask my mom if she ever saw any crazy results, but I know since monitoring my own disease, I've seen plenty.  Over the last fifteen years or so, I've used meters from Accu-Chek, Agamatrix, and Lifescan, and in the last few years, exclusively from Lifescan, due to what my insurance covered.  And for the most part, I never second-checked any of my results, unless I really felt that they were "off" in accordance with my physical symptoms.

But since using the Dexcom, I've been double, and sometimes triple, checking results.  Take, for example, the other day when I received the following results:

Incident One:
3:56 pm  86 mg/dl
3:57 pm  159 mg/dl
3:58 pm  164 mg/dl

The only reason I double-checked that first result was because the Dexcom had me at 170 mg/dl, not 80-ish.  I know the CGM isn't for dosing or treating, but it's pretty friendly for trending and "gisting," so the discrepancy caused me to double-check the result.  And, for the record, my hands were freshly washed with soap, dried, and clean.  The lancet was new (I know - dumb luck on that one).  And I wasn't eating or exercising at the time.  So what gives?  86 and 164 are very different numbers.  That's waaaaay more than 20%.  Even I can do that math. 

Twice.

Incident Two:
5:51 pm  110 mg/dl
5:51 pm  203 mg/dl
5:51 pm  229 mg/dl

This is not the first time this sort of thing has happened - I've blogged about it before and have linked to several of those posts throughout this post.  But now, things are different.  I'm in a constant state of blood sugar panic these days, worrying that not only are these results (accurate or otherwise) affecting my health, but how are they impacting my currently-being-built baby?  Would I be double-checking these results if I wasn't pregnant?  If I wasn't worried about BSparl, would I be willing to use three test strips (aka almost $3.00) per glucose check per sitting?

The FDA recently had meetings about this very topic: glucose meter accuracy.   (CWD mom Ellen Ullman actually spoke at this meeting, representing the diabetes community.  Go Ellen!!)  And Scott had an excellent synopsis of one of the most disturbing statements made at this meeting:

Excellent point made by Scott.

Not good enough for me.  I'm expected to maintain an A1C of 6.5% (or less) throughout my pregnancy.  Diabetes complications, no matter how hard we work to advocate against the guilt, are still ascribed to the patient, not the disease.

I'm working very hard to take care of my diabetes, and to have my efforts impacted by industry apathy isn't right. 

To echo Scott's call to action, I'm urging us all, as members of this influential diabetes community, to visit www.regulations.gov and search for Docket No. FDA-2009-N-0604 to leave your comments.  Tell the FDA that 20% isn't good enough, and we deserve every chance to take the best care of ourselves.  

I don't care if my meter comes in 15 different colors and can juggle knives - it needs to be ACCURATE

Raise your voice.

March 18, 2010

SEO-riously?

MORE diabetes SEO terms!If I'm looking for a laugh, I can head over to my Statcounter page and learn just how people are stumbling upon this here diabetes blog.  The top referrers are usually diabetes-related terms, and sometimes something involving my name, but other times - well, it just gets plain goofy. 

Here are some of the latest results from the SEO leaderboard. 

quippy phrase to sell adirondack chair - Honestly, this one is new.  I don't think I've ever even used the word "adirondack" on my blog before.  "Quippy?"  Yessir, I've used that word.  In my opinion, a quippy phrase to sell an adirondack chair would be "Ah, the wrong deck?  Get an adirondack!"  (It's good that I'm not in marketing.)

what is type 1 diabetes? tell me the truth - Okay, my child. Type 1 diabetes is a small, furry bird that lives solely on a diet of Cocoa Puffs and reality television.  It's most often found in temperate climates, and is actually the only mammal that is born knowing how to ride a unicycle. ... Oh, tell you the truth?  Fine.  Type 1 diabetes is a disease that causes the body to no longer produce the hormone, insulin. 

soxuntilme - Sounds like a Dr. Suess spoof.

Diabetes 365 project - YAY!  I love seeing the visibility of the Diabetes 365 project grow and grow. 

diabetes type 1 - when to go back to normal life again? - Define "normal."  Diabetes is a new normal, my lovely search term searchers.  If you've found SUM in hopes of finding "normal," you are out of luck.  But happy?  Score!!

oh no - Oh, YES!

six until me AND bret michaels - Were you looking for this post?  Or, perhaps, this?

Siah and Brett Michaels - boo yeah!!

March 17, 2010

Working From Home.

Working from my home office definitely is making for a more comfortable last trimester.  I'm able to put my feet up constantly (to ward off Le Puff), I can test my blood sugar and eat randomly at whatever schedule BSparl dictates that day, and I can (thank GOD) wear sweatpants more often than maternity clothes, saving me a ton of money on trying to find outfits that are appropriate for my basketball belly.

Only problem is ... well, my coworkers. 

They're freaking animals.

Prussia takes meetings constantly, and is always on conference calls.  (Oh, it must be Wednesday.  She's wearing her Wednesday tie.)

Prussia gets ready for a meeting.

And Abby, who poses as management, doesn't do anything other than go back and forth between her desk and the kitchen, muttering about how she's the only one with thumbs who gets things done around this place.  Seriously, I'm debating reporting her because she's thinks she's purrfect (sorry - couldn't resist!) and that her litterbox doesn't stink or something.

Abby ties one on.  (HA!)

But The Boss?  Is losing her mind.  Obviously.  She's been ranting about doing random cat-nip testing because people just seem stoned all day at work (even though, buzz around the food dish is that this little sausage boss is the one dipping into the stash.  I mean, look at her eyes.  She looks ready to launch.), and she has had trouble controlling her temper in meetings lately.  Those claws?  Mean business.

And the stupid cheese stands alone.

(I apologize for the above post.  This is what happens when Chris and I end up at Target, find ourselves staring aimlessly down the aisle with 50,000 choices in baby diapers, and end up buying what is tagged on our receipt as "cat apparel.")

March 16, 2010

Emergency Room Visits.

On Saturday night, I was stuck.  Completely stuck at 260 mg/dl and not budging, despite stacking boluses and not even thinking about carbs.  (Because if I even thought about carbs, my blood sugar would magically rise.  It's an unproven fact.)  And I was very, very frustrated. From about 9 pm - 1 am, I battled with boluses, wondering why they weren't working.  Like a moron (Morrone?), I didn't just pull out the infusion set, but instead tried every other trick in the book.

Until I realized it just wasn't working.

So I pulled the set at about 2 in the morning, restarted a new site, and tried to get some sleep.  But by this time, a roaring headache had set in.  I'm not sure if it was caused by the high, the frustration, or dumb luck, but my dome was throbbing all night long.

I woke up with the headache. I don't get headaches often at all, so having one was a big deal.  And "headache" was one of the main symptoms my doctors at Joslin told me to keep an eye out for, as far as signs of preeclampsia go.  Fantastic. 

So, being the genius that I am, I decided to sleep in on Sunday, stay very hydrated, and then go to a hockey game in Providence with my sister-in-law and her husband STEVE.  (Hocky game when trying to ward off a headache?  WTF was I thinking?)  The game was great, I had a chance to hang out with my always-entertaining and adorable niece M, but being surrounded by a bunch of happy, screaming kids and adults cheering on the P-Bruins made for an epic crescendo of said headache.

Chris and I ducked out a little bit early, and on the way back to our place, I called the doctor on-call at Joslin to give them the run-down.

"I have had this headache for about 12 hours.  But it came on after a bad night with a stubborn high blood sugar, so it's hard for me to say what's caused what."

The medical team recommended that I go home, take my blood pressure, drink water, take Tylenol, and have a cup of coffee to help make a dent in this headache.  They said they would call me back in an hour and a half to check on my progress.

ER bracelet, in fashionable blue.

"Seriously, I'm not concerned.  Dude, go to the movies with your friends.  I'll call you if, for some reason, they decide they want me to go to the emergency room or something.  But I seriously doubt they'll want me to," I said to Chris.  He took some convincing, but I felt okay - just a headache.  I had the very same discussion with NBF over the phone as I waited for Joslin to call back.  "No, they are just going to tell me to go to bed or something.  No worries, my friend."

Ha, ha.  And ha.  Joslin called back, I confirmed that the headache wasn't gone yet, and the doctor recommended that I head to the emergency room so that the baby could be monitored and I could have labwork run.  "Preeclampsia can come on quickly, and we aren't taking any chances," they said.

"Chris - just kidding.  Joslin wants me to to go to the ER."  I texted him.

"I'm leaving right now."  He responded.

So we spent four hours in the emergency room on Sunday night, checking on our little biscuit of a BSparl.  They drew labwork on me to screen for preeclampsia (no indicators, thankfully), checked my urine (no protein, - also a good sign), monitored my blood pressure (which was fine), and hooked my abdomen up to a few sensors to keep track of baby girl. 

"Every time she moves, press this button so we can track how active she is in there.  When you press the button, a green line will show up on the graph up there, see?"  The nurse pointed at the computer screen, where the baby's heartbeat was being graphed.

"No problem."  (BSparl must have loved all the attention, and maybe she liked listening to the episode of House that was on in the hospital room, because she filled that graph with green lines for 45 minutes as a result of her dancing.  Busy little baby bee.)

After a few hours, the ER doctors talked with my team at Joslin and everyone determined that I was okay to go home.  The baby wasn't at risk, I seemed to be okay, and the only issue was this lingering, nagging headache.  They prescribed extra strength Tylenol (bye bye, Dexcom for a few days) and this other medication that is intended to treat nausea in pregnancy but has been used to manage headaches, as well.  Hydration, sleep, relaxing, and medication were my recommended course of treatment.

What's the point of this post?  I have no idea.  I'm just rambling these days.  :)  It seems like everything is a pushed panic button when it comes to high-risk pregnancies (any pregnancy, I'd guess, but I only know my own so intimately), but I do have a kick-ass team when it comes to managing potential emergencies on a Sunday evening.  The headache still hangs on, but the medication is making it manageable, and I'm hoping it's totally gone by the time I head to Rhode Island for my baby shower on Sunday.

Counting down the weeks until BSparl arrives and makes her little mark in this world.  She comes with a how-to manual, right?  ... Where's that headache medication ... ?

March 15, 2010

Home Stretch: Diabetes, Pre-Eclampsia, and a Cute, Round Head.

The loooong home stretch.Part One:

The people at Joslin are eventually going to lock the doors when they see me coming.  Because last Friday, at my latest round of BSparl appointments, I burst into tears a few dozen times. 

I am not a crier.  I'm very emotional, but can usually keep my emotions well-contained until I'm back in the safety of my friends or family, and then I let loose.  But with just over six weeks until the baby arrives, I'm the definition of a basketcase.

Arriving at Joslin, I was on time.  For once.  And sporting hands clad in wrist braces and ankles sheathed in compression stockings.  Again, hot momma.  ;)  This puffiness was my top concern that I wanted to talk with my obstetrician about, so it was good that I was at least exhibiting the signs, so she could see Le Puff first hand.

During the first appointment, Dr. T lubed up my belly and we took a peek at Ms. BSparl.  

"Wow, she's got a good head on her!"  

"Yeah, the Morrone kids, all of 'em, were born with these tremendously round, sunshine heads.  We're like little moons orbiting around.  My niece and nephew were absolutely adorable, and they had the same beautiful, round heads."

"Well your daughter appears to have that head.  She's perfectly round!"  Dr. T took some measurements and determined that BSparl was about 4 lbs, 11 oz at this stage.  "She's on track to be about 8 lbs, 5 oz, it seems.  She's in the 58th percentile, and I'm very happy with that."

"Is she a little bigger because of my diabetes?"  (This question prompted the first set of tears - damn, I'm an emotional mess these days.)

"No.  If that was the case, her abdomen would be out of proportion, and her body is in perfect proportion.  She's just a little tiny bit bigger than average, but her size is not diabetes-related.  Your blood sugar control has been great.  How big was your husband when he was born?"

"He was 8 lbs, 8 oz.  And I was 7 lbs, 8 oz, I think."

"Right.  So your daughter is on track to land between the two of you.  It's completely normal."

And finally, finally, I saw my daughter's face on the ultrasound machine.  In previous checkups, BSparl had been spine up, face in, so her face was obscured by the placenta and I never had a good look at her.  A few other times, she had her hands up in front of her face, only letting us see a little bit of her.  But this time, she was pretty visible, and I could see her chubby cheeks, her button nose, and her father's lips. 

She has a face I can't wait to smooch.

After the ultrasound, Dr. T and I talked about her main concern:  my weight gain.  In the last month, I've put on 10 lbs, without reason.  My pants and shirts still fit the same, I haven't been eating more or less, and my numbers have been creepily stable, but the scale tipped out at 10 lbs heavier this visit.

"What the HELL is that about?"  I asked, ashamed that up until the beginning of March, I'd only gained 27 lbs with this pregnancy, but now I was already pushing the 35 lb mark ... with six weeks to go.

"Your feet.  Your legs.  And your hands.  I'm very concerned about this weight jump, not because of the weight itself, but because it's obviously water weight.  And I don't want any issues with pre-eclampsia cropping up."

(Enter the second set of tears from me.)   "I've been checking my blood pressure at home, and haven't seen any spikes.  But I'm puffy as all get out, and it's very, very uncomfortable.  No headaches, no trouble urinating, but puffy?  Yeah."

"I think we should run some blood work today to see if you have the blood indicators of pre-eclampsia.  It's not just the blood pressure and the headaches that are indicative of this issue.  By running the blood panel, we can see if your body is already gearing up to develop this problem, and we'll be prepared either way."

"Okay."  Blotting tears.  Such a mess.  "So we'll do that and an A1C and go from there?"

"That's the plan."

After a few other appointments, I headed home and focused on the weekend.  Dr. T called me on the ride home and said that my blood work came back perfectly, without a single blood panel indicator of pre-eclampsia and my urine also didn't show any protein spilling.  I felt reasonably at ease and comfortable with the fact that Le Puff was simply due to Le Pregnancy, and nothing more.

But there were some aggravating moments at Joslin, which deserve a whole separate post.  And the weekend?  Had plans on tap other than "relaxing." All is well, but it was a long and tangled experience.  More on that tomorrow.

March 12, 2010

Myabetic: Personalizing Diabetes Management.

I was diagnosed with type 1 diabetes just before I started second grade, back in 1986.  I played with Barbie dolls, colored countless coloring books with my box of Crayola 96 (sharpener in the back), and sported a messy ponytail as often as my mom would allow.  

But my life also included dozens of plastic bags filled with orange-capped syringes.  And black meter cases that zipped up the side and held my glucose meter.  And small vials of bandaid-scented insulin.  My childhood was colorful and fun and just like every other kids', but there were some dreary bits of diabetes management as a running thread.

I wish there had been things like this to hold my meter in when I was growing up with type 1 - because these meter cases are awesome:

I love this case.

This meter case was created by Kyrra Richards, who was diagnosed with type 1 diabetes in 2007.  I think it is GORGEOUS.  After her diagnosis, Kyrra created Myabetic - a specialty store stocked with playful and cool glucose meter cases.  She sent me a few of her meter cases to review here on SUM, and she also offered to share a little bit of her story.  

*   *   *

Kerri:  Hey Kyrra!  What’s your diabetes story?

Kyrra from Myabetic:  I grew up as a dancer and was diagnosed with type 1 diabetes after returning home from a dance tour in Afghanistan.  I had been performing for the troops at military bases and realized that I was out-eating soldiers in the dining facilities.  After guzzling down 24 water bottles in a day and a half, I finally went to the doctor and received my diagnosis just before my 25th birthday.  I began the endless cycle of doctor appointments, lab tests, educator meetings, and waiting rooms.  The physical changes were frustrating, but the emotional obstacles proved to be even more challenging.  I created Myabetic as a way to cope constructively with my diabetes.

Kerri:  How do you think that Myabetic can help make a difference for people with diabetes?  What gap are you guys filling?

Kyrra from Myabetic:  Myabetic was founded because I felt a need to personalize health management.  Although diabetes is a constant struggle, we have the opportunity to take control of our treatment.  Upon my diagnosis, I lacked the motivation and self-worth to properly care for my condition.  Using the standard-issue nylon case only made me feel more ‘sick.’  I personalize so much of my life – my cell phone, computer, license plate – why not do it with healthcare?  We are all strong, unique individuals, and I wanted our daily testing accessories to reflect our personalities.

Kerri:  What made you want to become more involved in the diabetes community?

Kyrra from Myabetic:  The most rewarding aspect of Myabetic has been the opporKyrra Richards, Founder of Myabetictunity to contribute to our supportive, accepting community.  People with diabetes are passionate and strong!  It’s time that our accessories and equipment make us feel the same way.  I love carrying around our cases and am excited to share our products with everyone.  I know they can make a difference and bring smiles to healthy faces.  (Especially since I jumped for joy when my diabetes educator gave me a bunch of purple lancets – it’s the little things…)

Kerri:  If people want to find out more about your products, or want to order a meter case for themselves, how can they get in touch with you?

Kyrra from Myabetic:  We currently have cases for men, women, and children available on our website, Myabetic.  We would love to have everyone become a fan of Myabetic on Facebook and/or follow us on Twitter.  Check out the Community section of our website to find the links.  Also, if anyone would like to contact me directly, my email address is krichards (at) myabetic.com.

*   *   *

Thank you so much for sharing your talents with us, Kyrra!  And in the interests of full disclosure (also known as TMI), I'm sending the free samples I've received from Kyrra onward to some very kind readers who have reached out over the years.  One good turn, right?

(I'm off to Joslin for the day - have a great weekend!!)

March 11, 2010

Looking Back: Chuck Norris ... and Diabetes?

This is an old graphic from a wicked old post (2007?  Whoa, the internet has had a hold on me for quite some time now.), but it still makes me laugh.  

My favorite is the second to last one.

That's it.  And now I have the giggles.

March 10, 2010

Eight Months ... But Two to Go?

Ah, the cruel truth to pregnancy.  I'm currently 32 weeks pregnant, which means I'm eight months along.  "Oh great, Kerri!  That means you only have one month to go!"

WRONG!

Those perpetuating the rumor that pregnancy is only nine months long, I beg you to stop.  Because when we, the pregnant messes, crest up to the eight month mark, only to realize that there are eight weeks left to go?  We cry.  Sometimes we just bust out crying.  Because pregnancy is 40 weeks long, and when you divide 40 (weeks in total) by 4 (weeks in a month) ... well, even I can do that math.  It equals 10.  Ten months. 

So I'm eight months along, but I've got seven weeks left to go.

BSparl at 32 weeks
(Yes, this shirt is the same one that my best friend wore to her baby shower.
Nothing says "I love you" more than sharing maternity clothes.)

Expansion is rapid these days, and my pregnant body has gone from "comfortable" to "OMG, TEN MONTHS LONG?"  On the regular ol' pregnancy front, I'm experiencing some wicked swelling in my hands and feet, but thankfully my blood pressure is still holding steady.  Also thankfully, it's been warming up for the last few days, so sporting flip flops doesn't look too dorky.

Sleeping is an issue, though.  I'm having a miserable time getting a good night's sleep, because this swelling in my hands is waking me up with shooting pains in the middle of the night.  Actually, every hour or so I'm waking up with pain, despite the fact that I'm wearing wrist braces to bed.  I may have to bite the bullet and take some Tylenol, even though it will render my Dexcom pointless. (Tylenol makes the Dexcom throw inaccurate results, and I can't take Advil while pregnant, so it's about choosing pain or accurate CGM results.)  I'm trying to relax and remember that it's only a few more weeks of this.

On the diabetes front (and I'm afraid to say this out loud), I seem to have hit some kind of stride.  The 300's are gone.  The 240's are gone.  I'm seeing a few spikey 200's, but they are sometimes explainable (like after I was 50 mg/dl and I over treated a low) and some I just need to forgive myself for.  Overall, my numbers are steadier and I'm seeing more flat lines on the Dex than I saw a few weeks ago.  I'm so, so hopeful that the next seven weeks roll out in the same fashion.  My total daily insulin dosage is up to between 68 - 75 units of Humalog a day (far cry from the 24 - 28u I was taking pre-BSparl), and I'm wondering if this will remain the case until the delivery.  I'm holding my breath, praying that things just hold freaking steady for a little longer.

This week, I'll see my OB/GYN and the rest of my prenatal team, and I have a lot of questions to ask.  Like what happens if I go into labor before my scheduled delivery date?  What exactly is supposed to be that "bag that stays packed just in case?"  What can I do to alleviate this swelling, in efforts to stay comfortable for the next seven weeks?  How about those four days we'll be spending in the hospital - will I be able to wear my pump once the c-section is over?  Can I put the Dexcom back on at that point, too?  Does the baby sleep in the room with us or does she have to go to a different part of the hospital while I recover?  Will I be on painkillers after the surgery?  Does someone show me how to breastfeed or is that something I'm supposed to take a class for beforehand? 

Are they really going to trust me with a BABY??

(The question mark has become the most-used key on my laptop these days.)    

March 09, 2010

Siah Has Opinions.

A guest vlog, by Ms. Siah Sausage, expressing her views on BSparl, sandwiches, and her desire for world domination.

March 08, 2010

Disclosure: How Much Is Enough? Or Too Much?

When I started blogging back in May of 2005, I used my real name.  Which didn't strike me as odd because I figured that the only people who would ever see my written ramblings would be people I knew and sent the links to ... so blogging as "Kerri Morrone" seemed like a fine thing to do.

But things took a different sort of path, and suddenly Google had a solid grip on my name.  Which, again, was okay with me because I'm making these personal disclosure choices on a case-by-case basis.  So for anyone willing to give Google a go, it's easy to find my photo, some of my health conditions and treatment choices, and that I've married into a new, more challenging name.  There's a lot of information out there that I have chosen to share, for better or for worse. 

What do you disclose on your blog?

In some cases, it's "better" for me to use my real name and share my real experiences because blogging has not only helped me achieve better health, emotionally and physically, in regards to life with type 1 diabetes, but it's helped connect me with you guys, and that has been a game changer.  Blogging has also given me some very special opportunities to help make a difference when it comes to diabetes advocacy, and that has been tremendous in fueling both my own health and my career.  And honestly, having diabetes and talking about it doesn't make me feel shy.  I like sharing my stories, and hearing yours, and connecting with people who really and truly "get it."  I felt alone for way too long.  The impact of blogging on my overall health is something I can't put a value on. 

In other cases, it's "worse" for me to not blog anonymously, because now any potential employer can send a query into Google and see that I have type 1 diabetes.  Would that make them less likely to hire me?  More likely?  No change at all?  Either way, that information about my personal health is out there, and I can't take it back.  And not just health information, but personal information.  Real life information.

Disclosure on a blog isn't just about letting people know about free samples, or advertisements, or sponsorship opportunities.  That stuff is important, on a level of maintaining integrity and letting people know they can trust you to tell the truth, the whole truth, and only add some crap about cats occasionally. 

But I've been thinking about how disclosure will be handled, going forward, when it comes to my daughter.  From the moment I found out she was blooming inside of me, I felt instantly protective of this little biscuit.  Chris and I have talked extensively about how we want to handle our child's identity in regards to our respective projects, and we both agree that she hasn't decided to become part of the Google matrix yet.  So we aren't going to put her there.  This is a decision that we, as a family, have made, but it doesn't mean that it's the right choice for everyone.  There is no "right choice," in my opinion - just varying perspectives and levels of comfort.  (And who know how I'll feel once she's here and her little face is just too chubby-cute not to want to post a photo of.)  It's a lot to think about.

If my daughter decides, when she's older, to have a Facebook page or a blog or whatever is the social networking "thing" to do by that time, she can make that decision for herself.  But I don't want her to Google her own name and find more than she's comfortable with. (... That is the weirdest thought ever, picturing myself talking about blogging with my daughter over like coffee or something.  The thought just made me grin.)  Hopefully she won't object to being called BSparl. 

How do you guys handle disclosure?  Are you comfortable sharing your full name and occupation with people?  What kind of information to you like to keep private, and what do you feel comfortable sharing 100% with anyone who asks?  Have you ever had any regrets about how you've chosen to present yourself online?  For those of you with kids, what helps you decide what to share, and when, and how much of it to share? 

Sorry for all the questions, but as the baby grows daily, so does my protective nature.  And so does my laundry list of questions. 

<< View SUM older posts.

Kerri Morrone Sparling

SUM News Bits

Archives

    Visit the SUM archives for a full list of posts, both old and new.

SUM Assorted Bits

Six Until Me.
Visitors since November 7, 2005

Creative Commons License
This weblog is licensed under a Creative Commons License.

SUM Syndication.

Add to Technorati Favorites Add to Google Subscribe in Bloglines Subscribe in NewsGator Online